welcome to the blog

you guys.. otto slept from 10pm-4am and then again from 5am – currently sleeping. what did i do to deserve such good luck? maybe baby boy is starting to realize his parents are so much more fun when they’re rested. and when they’re rested they can do more fun things like play with fall decor. […]

what a gorgeous fall weekend to have together for the first time in three weeks. i feel like we missed most of october so this warm fall weather was much welcomed. we are adjusting to what we call “the slower life’. in fact im typing this with one hand because otto is finally sleeping in […]

we received the news yesterday afternoon that we are officially homeward bound today! i cannot believe it. if you would have told me last week sunday we would be preparing to head home i would have given you a blank stare similar to the one i’m having right now. we have truly been gifted a […]

yesterday around 11am we were moved out of the picu and on to a general admission floor. being moved brought back such similar feelings of leaving the safety of the nicu just two short months ago. in just one week you get to know your team of caregivers and doctors so much that you feel […]

guys we are making baby steps forward (pun intended). literally after having what i call $hit days friday and saturday otto slowly has been making a turn around for the better. and i type this with the apprehension that the decision for more surgery could happen with any step of a doctor that walks into […]

this is hard. i’ve deleted and retyped that phrase about ten times now. i’m not sure what to say other than this is hard. it’s constant mental and physical battle and my goodness it’s only 11am. last night we went over his echo yesterday with one of the doctors who classified the leaky valve as […]