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you can add taking your child for surgery to the list of things nobody should have to go through. we are preparing the farm for others who graciously offered to watch it for us, cleaning the house, doing that last load of laundry and packing our bags for the hospital. these tasks are taking me […]

yesterday was a big long day at the hospital for us. we got a full in depth tour and explanation of how our otto’s heart surgery day is going to go. i hope that through all of this if anyone else is going through what we are going through they get a chance to read […]

i was making the schedule for the shop this weekend when it was there staring me right in the face. the lack 4 on a white square, the curser blinking waiting for me to type in workers names. october 4. next week. in some ways i feel like it’s all too soon and some ways […]

today is one of the days we’ve been anticipating and dreading all at the same time. today we are meeting with our otto’s surgeon to talk about the pending surgery and hopefully get it scheduled. i hate the idea of having it on the books because that means it’s actually going to happen but at […]

this week has been a total and complete roller coaster of emotions, plan, doctors etc. we have seriously had appointments every single day for the otter both at home and at helen devos. the biggest one was with the cardiologist on tuesday morning. otto had his echocardiogram (an ultrasound on his heart) and his EKG. we […]

here we are again heading back in for our routine cardio appointment. i’m not an anxious person typically and i usually thrive on stress but this is a type of stress and anxiety i’ve never experienced before. probably because i never had a kid before haha. i had this conversation with another heart mom the […]